Michael
A titan
2019 - 2023
Favorite Things:
+ Being with mom and dad
+ Books
+ Trucks
Best Michael Advice:
+ "When the dark clouds come, keep going." - Michael, age 3
+ "Develop an attitude of gratitude." - Michael, age 2
About Michael
Michael Stark Reading was a titan. A brilliant, kind, gentle, resilient, and loving child, he astounded everyone. And although just 4.5 years old, he endured more than most could imagine in a lifetime.
Michael was born with a rare and life-threatening genetic condition known as Neonatal Marfans (aka Early onset Marfans), affecting all the connective tissue in his body. In his 4.5 years of life, he survived three open-heart surgeries, eye surgery, leg and ankle surgery, scoliosis, lung conditions, and multiple ER visits and ICU hospitalizations. Despite his immense physical struggles, Michael's life was a symphony of laughter and miracles. But on September 10, 2023, following a sudden and rapid decline of his heart, Michael’s heart beat for the last time. Although Michael’s time was short, his life was miraculous, magical, and momentous.
You can learn more about his journey here.
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Michael co-authored a book at 18-months-old with his amazing rhymes. You can check his book out here (a portion of the proceeds goes to the Marfan Foundation).
A second book was also written about Michael and his beautiful relationship with the fire department. Check out that book here (a portion of the proceeds goes to the Marfan Foundation).
