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Neonatal Marfan:
Inspiring Stories of Love
Every child's journey with neonatal Marfan syndrome (also called early-onset or infantile Marfan syndrome) is unique. Here, we share stories of hope and resilience, celebrating the lives of those who are thriving, and honoring the memories of those we have lost. These are real stories of love, strength, and the beauty of the human spirit.
(Click on image to read their inspiring stories.)
The Many Faces of Neonatal Marfan
Meet the faces of neonatal Marfan syndrome (also called early-onset or infantile Marfan syndrome): a visual testament to their strength, diversity, and the beauty of their lives.
(Click on an image to scroll through the gallery)
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